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IBAN: IT70P0306909606100000191542
L.I.S.A.
lottiamo insieme per la
sanità degli adolescenti OdV
Fighting Together for Adolescent Healthcare AVO
Book presentations
The association was founded in memory of
Elisabetta Federico
so that what happened to Lisa would never happen again.
Lisa Federico
Elisabetta Federico, born in Ukraine in 2003, lived in Rome since her adoption at the beginning of 2009 till November 3rd 2020, when she flew away due to the consequences of an ill-advised bone marrow transplant. The previous summer, she had been diagnosed with a hematological, but not oncological, disease after the appearance of a large bruise, following a fall from her electric kick-scooter. At the hospital she had turned to, the doctors decided to submit her to the riskiest treatment without any first-line therapy.
L.I.S.A. Fighting Together for Adolescent Healthcare AVO advocates for more committed and dedicated health care for children and adolescents, particularly those with oncologic or hematologic diseases.
The association strives to ensure that the rights of sick children and adolescents are fully respected. It organizes and promotes comparisons for updates on the diagnosis and therapies of pediatric and adolescent oncologic/hematologic diseases.
Furthermore, it intends to monitor practiced therapies and bone marrow transplantation procedures, also by collecting information from patients and their relatives.
The organization is active in improving bone marrow and hematopoietic and stem cell transplantation protocols and monitors their application.
If you want to get involved with us
Join the association, participate in the collection of information, tell us about your experiences and report any malfunctions.
If you need help
Young person or parent, contact us if you need support in dealing with hospitals, if you are unable to get in touch with doctors or the facility, or if you feel you do not have enough information; call us if you need to examine medical records, get second opinions, if you want to change the hospital facility where you are being treated or where you are hospitalized; call us if after discharge or a tragic epilogue you want to learn more about what happened.
If you want to help us
Lawyer, legal expert or simple citizen, help us to enforce the rights of small and young patients in healthcare facilities; Doctor, nurse, healthcare worker, make your expertise and humanity available; and help us to help those in need, in the process of treatment and hopefully recovery.
